Thank you for visiting our team’s page! We are taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of Prader-Willi syndrome (PWS).
Our team’s name comes from the strength of our daughter Iris, who is such a joy and has taught us so much in her short life. We call her Mighty because she continues to overcome every challenge she faces with perseverance and grace.
Iris is a funny, charming, sassy and sweet two-year-old with a mischievous streak who loves to make people laugh. Her favorite things include her sisters, her mom and dad, her puppies, bananas, puzzles, pretend play, hats, reading, going to the park, bath time, bike rides, and spending time with all her family and friends.
We are excited to join the NW One Small Step fundraiser in Hillsboro, Oregon on July 30, 2022, for the 2nd year in a row to help raise much needed donations for PWS research. This is critically important to us as a family as it has the potential to significantly change Iris’ future and give her, and all other people born with PWS, an opportunity to live a more independent life.
Funds raised through your donations will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org/.
Please join us and donate now!