Thank you for visiting our team’s page! We are taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of Prader-Willi syndrome (PWS).
Those of you who know us know we are not new to fundraising. You may be asking why we continue to host events and raise money for research. The short answer is because Evan's future depends on it. He is now 14, in 8th grade, as tall as his mother and acting like a typical teenager in so many ways. But, when you look deeper, nothing about Evan's life is typical. Our family has modified virtually all aspects of our lives to ensure his well being and safety, but it doesn't have to be this complex or limiting. We hope for a future where Evan will be able to participate in social activities, school, future employment, sports and everything we think of as typical without going to extraordinary lengths to keep him safe.
We know this is possible because research fuels solutions. With treatments Evan can meet his full potential to live independent of the hunger that shapes every decision we make in his life. The Foundation for Prader-Willi Research has set its sights on funding research that lead to treatments so the lives of those with PWS are limitless. We will do WHATEVER IT TAKES to make this happen!
Many of you have followed along with us over these last 14 years and we will be forever grateful for your continued support and generosity!
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org/.