Thank you for visiting Team Reilly! We are taking "One SMALL Step" to help to raise funds for critical research to help eliminate the challenges of Prader-Willi syndrome (PWS).
18 months ago, our sweetheart Reilly was diagnosed with a rare genetic condition called Prader-Willi (commonly: "PWS" or "P-dub" as Dada tends to call it). PWS has varying symptoms, but the most common is a neurological disorder that develops in adolescence. This disorder drives PWS persons towards disabling and life-threatening food behaviors. The news was devastating and we felt hopeless.
Six months later, we discovered The Foundation for Prader-Willi Research (aka "The Foundation"): a research/advocacy org that refused to accept what precedent says is Reilly's destiny (i.e. a lifetime of 24/7 care).
Your attendance at our virtual walk on Saturday, June 27, 2020 (or donation in lieu of) will make a big difference. For the first time ever, there are new PWS drugs/treatments in final stages of trial/FDA approval; these advancements are powered by the medical guidance and funding that The Foundation provides. With your help/support, The Foundation can push these advancements over the finish line, giving real solutions and hope to Reilly and thousands of PWS kids/adults like her everywhere.
Chances are that you've never met a PWS family, other than us. Here's an inspiring video of the lives you'll change when you support this organization. (Warning: I've watched this a hundred times, and it still makes me cry, it's so sweet. Reilly is in it too! https://youtu.be/hHSwg8YmS4c .)
Please join me and donate now!
Thank you so much for you consideration and care.