Deerfield, IL

She has come so far... help Reilly continue on her journey!
She has come so far... help Reilly continue on her journey!

Team Reilly

Thank you for visiting Team Reilly!  We are taking "One SMALL Step" to help to raise funds for critical research to help eliminate the challenges of Prader-Willi syndrome (PWS).

18 months ago, our sweetheart Reilly was diagnosed with a rare genetic condition called Prader-Willi (commonly: "PWS" or "P-dub" as Dada tends to call it). PWS has varying symptoms, but the most common is a neurological disorder that develops in adolescence. This disorder drives PWS persons towards disabling and life-threatening food behaviors. The news was devastating and we felt hopeless.

Six months later, we discovered The Foundation for Prader-Willi Research (aka "The Foundation"): a research/advocacy org that refused to accept what precedent says is Reilly's destiny (i.e. a lifetime of 24/7 care).

Your attendance at our virtual walk on Saturday, June 27, 2020 (or donation in lieu of) will make a big difference. For the first time ever, there are new PWS drugs/treatments in final stages of trial/FDA approval; these advancements are powered by the medical guidance and funding that The Foundation provides. With your help/support, The Foundation can push these advancements over the finish line, giving real solutions and hope to Reilly and thousands of PWS kids/adults like her everywhere.

Chances are that you've never met a PWS family, other than us. Here's an inspiring video of the lives you'll change when you support this organization. (Warning: I've watched this a hundred times, and it still makes me cry, it's so sweet. Reilly is in it too! .)

Please join me and donate now!

Thank you so much for you consideration and care.

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