2019 Silver Creek, NY

Team Bystrak

Thank you for visiting our team’s page! We are taking one SMALL Step to help raise funds for critical research to help eliminate the challenges of Prader-Willi Syndrome (PWS). As you know, our youngest daughter, Violet, was diagnosed with PWS when she was only three weeks old. She's faced a lifetime of challenges in her nine years, but has brought us more joy and love that we could ever imagine! The future for those with PWS is uncertain, as this is a progressive disorder.  We fully believe supporting research will allow her to Live Life FULL!

Bring your family and friends! The more, the merrier! Please register to become a team member, a spectator, or consider making a donation. Your donation will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org/.

Thank you!

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