Thank you for visiting my page! This year to celebrate my 70th birthday on January 24th, I'm asking for donations to the Foundation for Prader-Willi Research in honor of my great-niece Henley Gibson. Prader-Willi syndrome (PWS) is a rare, life-threatening medical disorder. Nearly every system in the body is impacted by a PWS diagnosis, but the hallmark symptom is hyperphagia, or continuous, extreme hunger. A person with PWS never feels full. The Foundation for Prader-Willi Research was established with one aim in mind: to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development, with the goal of helping all of those living with PWS live a FULL and independent life.
Henley is an amazing little girl with so much spirit and determination. She and her family fight hard everything single day so she can Live Life FULL! I am proud to be a part of her support system!
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org.
Please join me and donate now!