Thank you for visiting my page! As you all know, Maddi was born with Prader-Willi syndrome (PWS) and I am taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of PWS. The past few years have been very challenging for Maddi and the entire family. Luckily there are several new drug trials going on thanks to these fund raising efforts. We are hoping to reduce the challenges this brings to Maddi and those living with PWS.
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org.
Please join me and donate now!