Thank you for visiting our page! As you know, our son Charlie has Prader-Willi Syndrome (PWS) and we are taking One SMALL Step this year to help to raise funds for critical research to eliminate the challenges of PWS. We'd love to have you join us on Saturday, May 16th for a pic-nic and walk! The event will be from 10:00 AM - 2 PM at Huguenot Park Shelter 1 (10901 Robious Road, North Chesterfield, VA 23235). If you'd like to be part of our walk, please join our team as we support Charlie and others like him who have PWS. If you can't, please consider helping us raise funds for research instead.
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org. This foundation has supported research into treatments and therapies for so many of the challenges that Charlie will face. Currently, they are sponsoring research into drugs that may elminate hyperphagia - the unquenchable, all-consuming hunger that makes life for PWS patients so challenging. One of those is in Phase 3 clinical trials now, meaning that it may be available before Charlie transitions into that phase of PWS...with their help, he may never suffer from hyperphagia at all!
Please join us and donate now!
With love and thanks,
Tad & Amy Watson