Thank you for visiting Matthew's page! We found out at 9 days old that Matthew had Prader-Willi syndrome (PWS) and since then we have continued to participate in research and other efforts to improve his and others' lives who are impacted by PWS. As in past years, we are taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of PWS.
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more at http://www.fpwr.org.
This year the pandemic hit us hard and Matthew started living away from home at a school that specializes in PWS, which has been a mix of emotions but ultimately good for him and our family. The challenges he has to deal with is exactly what we are trying to address through the work at FPWR. Madison has been a grant reviewer and knows that the donations are carefully considered and put to great use.
We know this is a tough year for many of you but if you can, please join us and donate now!