Thank you for visiting Zach's fundraising page! Zachary has Prader-Willi syndrome (PWS) and we are taking One SMALL Step to help raise funds for a promising new treatment that may REDUCE DISRUPTIVE BEHAVIORS!!
Zachary is now 13 and he continues to struggle with many aspects of how PWS affects him, but the behavior challenges are still the most difficult challenge for him at times. It affects our entire family and can be very difficult to manage. We are thankful for ANY amount, big or small ($5 !! or $500 !!) that you can donate to exciting new research into external Vagus Nerve Stimulation (VNS) to help Zach and others living with PWS. The Foundation for Prader-Willi Research is currently working to fund a VNS research project that we are hopeful that Zach can be a part of. This project may lead to this new treatment being available to and helping those with PWS who struggle with behavior challenges. A small study was very promising in reducing disruptive behavior in individuals with PWS. We are hopeful!! We are praying!! Romans 12:12 tells us to "be joyful in HOPE, patient in affliction, faithful in prayer". We know God has big plans for Zach. We have work to do on the journey to see those plans come to fruition. Donate and be a part of Zach's Team!! We thank you from the bottom of our hearts.
Come play kickball with Zach and friends in Lawrenceville GA on November 5, 2022 at 10:00am. So much fun will be had (both serious and kid-friendly kick ball games will ensue)! There will be a much anticipated yearly raffle with FANTASTIC PRIZES (brewery tours, zoo tickets, restaurant gift cards, and more!). You will meet some PWS warriors and their families and be donating to a great cause. Register here: http://act.fpwr.org/site/TR?fr_id=2032&pg=entry
All funds raised will be used to directly advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org.
Please join Zach's Team and donate now!