Thank you for visiting my page! Our 10 year old son, Graham, has Prader-Willi syndrome (PWS) and I am taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of PWS.
Since Graham was diagnosed at birth, we have hosted fundraisers every year for research. Because of the tremendous funding in our community, we were able to enroll Graham in a study drug trial that addresses the hunger and behavior issues with PWS. For the past 3 years, we have traveled to Vanderbilt University to particpate in this trial. We have also participated in other online trials to analyze social play among peers in people with PWS. Although tremendous progress has been made, we still have a long way to go. Our goal for Graham is to live a full and independent life. We ask you to help us get there.
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org.
Please join me and donate now!