Whitnee was born 8 weeks premature in Decatur, TX and immediately flown to Cook Children's in Ft. Worth. We thought she was just premature, we didn't realize that doctors were also concerned that something else may be going on with her. She was floppy, she never woke up to eat, she didn't cry, she couldn't swallow. They went through multiple tests and finally landed on Prader Willi Syndrome. Whitnee is now 3 years old and is doing well but is still developmentally delayed. Her speech and gross motor skills are that of a 2 year old. She is the happiest and most loving 3 year old and loves playing with her brothers and all of her babies. One day, a switch will flip in her brain which will cause her to never feel full. We don't know when that will happen but we hope by the time it does, a medication will be available to help relieve her. FPWR works so hard to raise money, organize studies, recruit participants, and spread awareness for PWS. We are so thankful for the research teams and excited about what is to come.
Thank you for visiting! If you are able to donate, we would appreciate it very much. Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org.
We would love to have you register for the Dragon Dash on April 27th and join us in walking for Whitnee!