Thank you for visiting our personal campaign page! Our daughter Emily has Prader-Willi syndrome (PWS) and we are helping to raise money for the Foundation for Prader-Willi Research (FPWR) by participating in a One Small Step fundraising walk being held in Washington, DC on June 4th. All proceeds from the One Small Step walks go to fund Prader-Willi Syndrome Research so that we may eliminate or reduce the challenges our loved ones face. If you are a repeat donor, we just love you. If this is your first time donating, thank you SO MUCH! It's great to have my family and friends supporting us in our fundraiser.
Emily and all children and adults with PWS deserve a life well lived, and we are still full of hope that a bright future awaits Emily. The key to a brighter future lies in research into understanding and treating PWS, and supporting this kind of innovative and important research is the primary mission of FPWR. Please donate and support this research that holds the promise of creating a positive impact in all lives affected by PWS.
Bev and Jim Folmer