While we breathe, we hope!
A diagnosis of Prader-Willi Syndrome is many things - it is scary and consuming and there are times that fear is the word we use the most to describe PWS. I want to change that - let's choose a different word to be synonymous with Prader-Willi:: HOPE!! I am taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of PWS. Emma needs research, her friends need research, they need hope. It is no longer IF-now with more and more clinical trials in the pipeline - it is more realistically WHEN!
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org.
Please join me and donate now!