Thank you for visiting our page! Our son Austin has Prader-Willi syndrome (PWS) and we are taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of PWS. Challenges for Austin include a constant feeling of hunger, low muscle tone, processing delays, irregular sleep cycles, social communication delays, vision and dental. The impact on his life due to contstant hunger is great.
We are asking for partnership in spreading the word about PWS by joining us at our 5K walk/run on July 25th. We start and finish at Witch Hazel Elementary School in Hillsboro. If you can donate funds that is appreciated as well. Recently walks like these have increased the impact in the research world and we are seeing an uptake in research advancement - SO exciting!
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org.
Please join me and donate now!