Thank you for visiting my page! It’s hard to believe that Lily’s 13th birthday is almost here! She’s come a long way, with many ups and downs while navigating life with Prader-Willi syndrome (PWS). We are taking one SMALL Step to help raise funds for critical research to help eliminate the challenges of PWS for EVERYONE living with this diagnosis.
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research. You can learn more about PWS and the research that is underway at http://www.fpwr.org.
Please join me and donate now!