Beyond food issues and low muscle tone, individuals with Prader Willi Syndrome have a difficult time with change and transition on a daily basis. This leads to more frequent behavioral and emotional meltdowns that can be dangerous and unhealthy long term. The pre-teen stage may prove the most challenging for many families. Examples like the one I just described comes with being an educated caretaker. With that said, the discovering comes from research. And to conduct that, it comes from funds. Everything has a process. Hence, I am raising funds for critical research to advance PWS research through the Foundation for Prader-Willi Research. Please help with contributions if you can. It would mean so much to the families with loved ones who are living with PWS to one day know that your donation assisted with helping them live a more fulfilling life thanks to newly discovered research findings.

You can learn more about PWS and the research that is underway at http://www.fpwr.org