Thank you for visiting Caroline’s Page!
Caroline was born on March 11th, 2021. About a week into her six-week NICU stay, she was diagnosed with Prader-Willi syndrome (PWS). PWS is a genetic disorder that occurs in approximately one out of every 15,000 births. It is an incredibly complex and wide spectrum disorder, which means that the many symptoms of PWS can range dramatically in severity and occurrence.
Caroline is now home with us and about to begin her long journey of occupational, physical and speech therapy as she builds the basic skills that we took for granted with our first two children. We hope that she'll soon start Growth Hormone therapy--currently the only known treatment for improving quality of life for children with PWS.
We hope that you will donate to the Foundation for Prader-Willi Research (FPWR). The FPWR is leading the way on research to combat the most debilitating symptoms of PWS. 100% of all funds raised will be used to advance PWS research. You can learn more about PWS and the research that is underway at http://www.fpwr.org/.
It is our hope that with advances in treatments and therapies related to PWS, Caroline will one day be able to live an independent and fulfilling life.
Please join us in supporting Caroline and donate now!