Hello and thank you for visiting our page!
Barry's nephew Nate has Prader-Willi syndrome (PWS), a rare disease that occurs in 1:15,000 births. Nate is an awesome, one-of a-kind kid that has overcome a lot of challanges! You can learn more about PWS and the research that is underway at http://www.fpwr.org/.
Similar to last year, we will be hiking one of Colorado's 14ers (La Plata Peak) in mid-September to raise funds for critical research to help eliminate the challenges of PWS. Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research.
Please join us as we summit for Nate and PWS and donate now!
Love,
Kayla and Barry